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Table 1 Aims and approaches of PPI [3]

From: Is this really Empowerment? Enhancing our understanding of empowerment in patient and public involvement within clinical research

 

PPI as ‘means to an end’

PPI as ‘end in itself’

Model

Consultation by invitation

Partnership/alliance

Approach

• Top down

• Pragmatic

• Outcome oriented

• Bottom up

• Rights based

• Process oriented

Purpose for research

• Increases the relevance of research

• Increases the quality of research (adds insight to the design, methods and findings; assists in dissemination and implementation)

• Representation of community values and preferences

• Transparency and accountability

• Equalising elitist and exclusionary power imbalances between the public and the academic community

Nature of involvement

• Information giving about decisions made

• Invitation to respond

• Encourage new ideas and joint decision making

Relationship

Transactional

Cooperative